Our Megan is 3 years old as of Christmas Time 2004.
She is doing terrific. I find I gain more confidence in her ability to
be “o.k.” as she reaches each new milestone that other children
reach. When she learned to crawl and walk, talk and laugh.
When she swims or learns to ride her bike. When she swings, hangs
from the monkey bars or climbs the apple tree in front. Yes, even when
she runs and fights with her big brother.
We face new challenges together as any parent and
child do. But, we both learn how to put on a band-aid or dress
the dolly or tie a shoe with one hand. All things I took for granted
before.
Megan’s story started at the 20 Week Ultra Sound
when they told us everything we can see looks normal but we want you to
see a specialist. Two days later the specialist told us that she was to
be born missing her left hand and most of her forearm. When I stopped
throwing up, I started to dry my eyes and look for support. To find out
what the future held for all of us. We leaned on our parents and our
family for support. I found this support group. I met with physical
therapists and a prosthetist all before she was born.
We learned that if we treat her like every other
child and don’t tell her she can’t do something because of her limb
difference she is no different. We don’t help her do it unless she
asks for help or if we see frustration. She is her own advocate and she
tells people her story “I was born that way” or her favorite
that she likes to tell people “it was a shark bite.” She asks
the hard questions like "how come I don’t have 2 hands"
or "will I get one?" Sometimes people or situations
make me sad again but I am done grieving for the “Perfect Child” I
did not get and am enjoying the Perfect Child I did get. We face each
day with hope, God’s Grace, friends and family and other parents who
understand all the feelings because they have them too.
We can’t give any advice on how to handle all
this because everyday we learn something new. We just know if you are
reading this now because of a child with a limb difference, that you are
not alone.
Please feel free to send an email to Megan or her parents
with any questions or comments by clicking
here.